Dear friends,
A year ago I asked for support in raising funds so that Ocumel Canada can
support Canadian patients. Thank you to the many people, all over the world, for your generosity and kindness. I couldn't believe it!
We have had a wonderful and productive year, thanks to the incredible support
you gave. We now have a detailed report on the issues that face ocular melanoma
patients across the country.
https://saveyourskin.ca/wp-content/uploads/SYSF-Ocular-Melanoma-Survey-Report.pdf
The biggest difficulty they face, if they live far from the
four treatment centres, is travel costs which are often not covered my medical
or private health plans. On Wednesday we were asked if we would cover the
hospital costs for three out of province patients who need to start a new
treatment in Toronto which has just become available, the first of its kind and
the first good news we have ever had for patients with metastasis. We
immediately said yes and will now try to change the system so patients are not
discouraged from seeking treatment. We help the patient first and then advocate
for change.
We now have a private Facebook group with over 100 Canadian patients in it so
we can hear their concerns and share information. This builds community where
previously there was none. We are learning to support each other.
And so, I am asking again if you are able and willing to help fund our
activities as we continue our work. Every dollar we raise goes to cover patient
costs. None of it goes to admin or other expenses.
Have a look at my fundraising page this year and please consider helping out.
https://saveyourskin.akaraisin.com/ui/moveformelanoma2021/p/66ce5f2cba6b4f2a97e485637e0c7e56
And here is another story of a young man in North Vancouver whom we have helped.
With gratitude, Nigel
